The Association for Glycogen Storage Disease
The Association for Glycogen Storage Disease
The AGSD-UK provides support and help for children, adults and families living with any one of the extremely rare Glycogen Storage Diseases (GSDs). It does this by providing information, putting people in contact, issuing newsletters and holding conferences, workshops and practical training courses. We also publish a growing number of books written in non-medical language.
The Association employs two part-time staff and a full- time family support nurse is available for families with Pompe disease.
The AGSD-UK currently supports around 500 patients and their families.
- Date: January 15, 2014
