Gauchers Assocation
Gauchers Assocation
The Gauchers Association is the only organisation in the United Kingdom that provides information and support to those with Gauchers disease, their families and health- care professionals , its main aims remain:
- To provide information on Gaucher disease and to keep families and medical advisers in touch and up to date with latest developments in the field.
- To encourage the availability of treatments for patients.
- To encourage fundraising for medical research.
- To publish a half yearly newsletter.
- To maintain and keep updated its website at www.gaucher.org.uk
- To hold periodic conferences and workshops.
- To represent the interests of Gaucher patients at all times to ensure that the voice of the Gaucher patient is heard.
- Date: January 11, 2014
